Resources
 
Pulse Oximetry Screening - Webinar 2: An In-Depth Look at Pulse Oximetry Issues (From 8/23/11):
This webinar is second in a series of three and is designed to give an in-depth look at issues surrounding pulse oximetry screening so that advocates can effectively communicate with their legislators. Like the first webinar, this is for both new and experienced advocates and for people who would simply like more information on this important issue.
Participants will:
- learn to distinguish myths versus reality about pulse oximetry screening.
- receive information about a successful multidisciplinary site implementation of pulse oximetry screening.
- learn the tools necessary to communicate this information to their legislators to effectively advocate for pulse oximetry screening in their state.
Speakers:
Gerard Martin, MD, FACC, Children's National Heart Institute
Elizabeth Bradshaw, MSN, RN, CPN, Children's National Medical Center
Amy Basken, National Advocacy Chairperson, Mended Little Hearts
To view the webinar (wmv format), click here.
Please send your questions, comments and feedback to: jodi.lemacks@mendedlittlehearts.org.
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PULSE OXIMETRY SCREENING: AN INTRODUCTION TO ADVOCACY ISSUES (From 7/26/11):
This webinar is designed for anyone who wants to learn more about advocating for pulse oximetry screening--whether you are a new or experienced advocate, or even if you just have an interest in the topic. Participants will:
- learn what pulse oximetry screening is and what it isn't.
- learn benefits of pulse oximetry screening and obstacles to effective use of pulse oximetry screening.
- be able to identify key issues of pulse oximetry screening occurring at the federal level and the state level.
- be provided with tools to constructively advocate in their home district.
Speakers:
Paul Matherne, MD, Professor of Pediatrics, Head of Pediatric Cardiology, University of Virginia
John S. Hokanson, MD, Division of Pediatric Cardiology, University of Wisconsin, School of Medicine and Public Health
Saiza Elayda, Senior Specialist for State Advocacy and Grassroots, American College of Cardiology
Annamarie Saarinen, 1 in 100 & Newborn Coalition
To view the webinar (wmv format), click here. To view the PowerPoint presentation, click here. To view pdf version, click here.
Please send your questions, comments and feedback to: jodi.lemacks@mendedlittlehearts.org.
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- American
Heart Association - Dedicated to providing you with education and
information on fighting heart disease.
- The
Children's Cardiomyopathy Foundation - The Children's Cardiomyopathy
Foundation (CCF) was established in 2002 with the purpose of supporting
research and education on pediatric cardiomyopathy (HCM, DCM, RCM, ARVD
in children under age 18 years). CCF offers a family listserve, directory,
biannual newsletter as well as other support services and patient materials
to families with children with cardiomyopathy or families who have lost
children to the disease.
- Congenital
Heart Information Network - Congenital Heart Information Network
(C.H.I.N.) is an international organization that provides reliable information,
support services and resources to families of children with congenital
heart defects and acquired heart disease, adults with congenital heart
defects, and the professionals who work with them.
- Saving Little Hearts - Dedicated to helping children with congenital heart defects and their families by providing emotional assistance and educational information primarily through the distribution of Care Packages.
- Heartbeat Articles
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